ERKNet - European Reference Network for Rare Kidney Diseases

ERKNet is the European Reference Network for Rare Kidney Diseases, a consortium of expert pediatric and adult nephrology centers in 24 European countries providing healthcare to more than 70,000 patients with rare disorders of the kidneys, including glomerulopathies and congenital anomalies of kidney and urinary tract. The network is also committed to addressing ultra-rare disease, such as ereditary tubulopathies, tubule-interstitial diseases, and thrombotic microangiopathies. 
The ERKNet partners offer top quality multidisciplinary healthcare for a wide range of rare kidney disorders. Theyuniformlyapplyclinical guidelines and pathways according to latest medical knowledge and strictly monitor the quality and outcomes of therapy across the Network.
ERKNet is also dedicated to improve knowledge about rare kidney diseases among patients and healthcare professionals, and disseminates disease information via its website and by education and training activities. 
ERKNetoffers virtual consultation services to physicians throughout Europe who need advice for challenging cases with a rare kidney disease.  The Network actively supports clinical research to improve diagnosis, risk prediction and development of new therapies for patients with rare kidney disorders.  
The Network works in close contact with European patient advocates (ePAGs) and different renal patient communities and organisations.