Home > European References Networks > LUNG - European Reference Network for Rare Lung Diseases
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First Representative
Paolo Spagnolo
UOC Pneumologia
paolo.spagnolo@aopd.veneto.it
Second Representative
Elisabetta Balestro
UOC Pneumologia
elisabetta.balestro@aopd.veneto.it

LUNG - European Reference Network for Rare Lung Diseases

The ERN LUNG is composed of nine main networks representing different rare lung diseases (interstitial diseases, cystic fibrosis, non-cystic bronchiectasis, pulmonary arterial hypertension, primary ciliary dyskinesia, alpha-1 antitrypsin deficiency, mesothelioma , chronic dysfunction of the transplanted lung and other rare lung diseases). Among these, the Padua Hospital has obtained recognition for the network dedicated to Interstitial Diseases (ERN LUNG ILD - Interstitial Lung Disease).
These diseases require, for their management, a multidisciplinary team of dedicated professionals who allow an early and accurate diagnosis, thus facilitating access to appropriate treatments.
The network aims to improve knowledge in European countries, the standards of care, the quality of life and the prognosis of patients affected by the diseases covered by this network. The members of the ERN LUNG-ILD are committed to developing and disseminating guidelines, proposing homogenous therapeutic approaches among the various centers of the network, initiating and supporting the creation of European-level registries of these conditions, conducting clinical studies for the development of new drugs and studies on the natural history of these diseases.
Finally, the network for Interstitial Diseases collaborates closely with the European Federation of Pulmonary Fibrosis Patient Associations (European Idiopathic Pulmonary Fibrosis and Related Disorder Federation EU-IPFF) by promoting information and dissemination activities for patients in order to improve the quality of life in Europe.

Related Structures

UOC Pneumologia
UOC Istituto Radiologia
UOC Anatomia Patologica 2
UOC Chirurgia Toracica
UOC Cardiologia
UOC Reumatologia
UOC Clinica Pediatrica
UOC Fisiopatologia Respiratoria
UOC Ematologia
UOC Otorinolaringoiatria
UOC Radiologia

Desease list

Code ORPHACode ERNDenomination
Connective Tissue disease-associated Interstitial Lung Disease
ORPHA:182101Eosinophilic pneumonias
ORPHA:2032Idiopathic Pulmonary Fibrosis and Idiopathic Interstitial Pneumonias 
ORPHA:244Kartagener Syndrome
ORPHA:31740Exposure-related Interstitial Lung disease
ORPHA:389Langherhans cell histiocytosis
ORPHA:538Lymphangioleiomyomatosis
ORPHA:797Granulomatous Disease (i.e. Sarcoidosis)