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Home > European References Networks > PaedCan - European Reference Network for rare or low prevalence complex diseases Paediatric Cancer

PaedCan - European Reference Network for Pediatric Cancer

The average survival of children with cancer has improved in recent decades. For some subtypes the improvements in survival were particularly significant. However, this is not true for all pediatric cancers. Furthermore, differences in survival rates remain comparing the different European regions with worst outcomes in Eastern European countries.
The ERN PaedCan aims to improve access to high quality care for children with cancer, especially for those conditions that require specialized experience and sophisticated instruments, not ubiquitously present in Europe. The ERN PaedCan was born from a previous project funded by the European Union ENNCA, Pan Care and ExPO-r-NET. The ERN PaedCan is based on a network of highly specialized centers which collaborating can increase their expertise and visibility towards the medical community and the patients themselves. A tumorboard has been created which, using modern telematic communication techniques, allows to share experiences and therapeutic opinions. The ERN PaedCan aims to improve the survival of children with cancer and their quality of life, by implementing cooperation, research and training. The ultimate goal is to reduce, among the various member states of the European Union, the survival inequalities of children with cancer and the differences in the diagnostic-therapeutic capabilities of the various health systems.

https://health.ec.europa.eu/rare-diseases-and-european-reference-networks_enEuropean Union website where you can find more information about the European Reference Networks

Related Structures

UOC Clinica di Oncoematologia Pediatrica
UOC Anatomia Patologica 2
UOC Chirurgia Pediatrica
UOC Clinica Oculistica
UOC Chirurgia Maxillo Facciale
UOC Neuroradiologia
UOC Otorinolaringoiatria
UOC Istituto Radiologia
UOC Medicina Nucleare
UOC Urologia
UOC Neurochirurgia Pediatrica
UOC Chirurgia Generale 2
UOSD Ortopedia Pediatrica

Desease list

Code ORPHACode ERNDenomination
ORPHA:100088Thyroid cancer
ORPHA:100093Carcinoid of the appendix
ORPHA:100100Thymic tumor
ORPHA:150Nasopharyngeal cancer
ORPHA:1501Adrenocortical tumor
ORPHA:180824Rare pancreatic cancer
ORPHA:183487Skin cancer
ORPHA:217071Renal cell carcinoma
ORPHA:251636Ependymoma
ORPHA:276142Rare tumor of the salivary glands
ORPHA:319Ewing's sarcoma
ORPHA:3394Soft tissue sarcoma
ORPHA:3399Germ cell cancer
ORPHA:401920Hepatocellular carcinoma
ORPHA:449Hepatoblastoma
ORPHA:513Acute lymphoblastic leukemia
ORPHA:514Acute monoblastic leukemia
ORPHA:519Acute myeloid leukemia
ORPHA:521Chronic myeloid leukemia
ORPHA:547Non-Hodgkin lymphoma
ORPHA:573163Pheochromocytoma and paraganglioma
ORPHA:616Medulloblastoma
ORPHA:635Neuroblastoma
ORPHA:64742Pleuropulmonary blastoma
ORPHA:654Nephroblastoma
ORPHA:668Osteosarcoma
ORPHA:780Rhabdomyosarcoma
ORPHA:790Retinoblastoma
ORPHA:94Astrocytoma
ORPHA:98293Hodgkin's lymphoma
ORPHA:99913Non germ cell gonadal tumors